This blog is aimed at people who are (newly) affected themselves, their relatives and their environment. In addition, of course, it is also aimed at medical staff and everyone who is interested in the topic of PEG feeding tubes. This blog offers a very unique perspective. Every Friday I write about my own experiences from over 20 years of living with a PEG feeding tube.
Rare testimonials from patients
Supposedly, a PEG feeding tube is one of the most common medical interventions in modern medicine. No wonder, since the conditions that require artificial feeding are very diverse. Despite the often invoked information age, one unfortunately only finds very few reports on the subject from people who are affected themselves. Usually, there are contributions from medical staff, with their very own, often very distanced, point of view. 2022 I wanted to change that and started my blog about life with a PEG feeding tube in German. Now, two years later, I would like to share my experiences also in English.
No fear
From my own experience, I know that it can be quite scary when the attending doctors suggest a feeding tube. Sometimes they can be damn insensitive about it. I had to experience that first-hand. I will report on this in more detail elsewhere. Since I have a PEG feeding tube myself, I hope that I can contribute with my experiences to answering open questions authentically and first-hand and to allaying fears.
Ambition for this blog
My own ambition is that this blog becomes a useful contact point for those who are directly and indirectly affected by the topic of PEG feeding tubes. I am not a medical specialist myself, and I only share my own experiences here. As a journalist, however, I always take the greatest possible care when writing articles. Even though it will often be my own experiences. Should there be any cooperation with companies or other institutions at any time, I will clearly indicate this.
Organisational
With more than 20 years of living with a PEG stomach tube, there is of course a lot to report. Logically, this cannot all be done at once. Therefore, every Friday there will be a new article on a specific topic.
If you have any questions, feel free to leave a comment. Then others who might feel the same way can also benefit from my public response. Of course, you also have the option of writing me an email or booking a personal 1:1 dialogue. I always answer comments and e-mails as quickly as possible. Please let me know if you are interested in certain topics related to everyday life with a PEG feeding tube. I will then see if I can write an article about it.
If you want to know who I am, take a look at the “About me” post. I am glad that you are reading this blog and I hope that one or the other article is interesting and helps you personally. Please feel free to recommend “Life with PEG” to others!