In my last blog post, I told you how the insensitive approach of my doctors initially led to me completely blocking the topic of PEG feeding tubes. Especially because my cautious interest was not taken seriously. This didn’t make it any easier for the staff at the next clinic to convince me to have a …
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Category:personal
The doctor’s consultation on the PEG – a negative experience
Sometimes you already suspect it (and may even have successfully suppressed it until now). When the doctors treating you tell you that a PEG feeding tube is really necessary, it is still often a shock. Even if a PEG is a really good therapeutic tool, a permanent feeding tube is usually nothing to look forward …
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Fears about the PEG feeding tube
If someone is afraid of a feeding tube, I can absolutely understand that. I felt the same way at the time. Looking back, however, these fears were completely unjustified. That’s why I think it’s all the more important to address those fears here. Fear of the unknown Today I am a professional when it comes …
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My first PEG feeding tube: an experience report
I have already described how a PEG tube is placed in this blogpost here. However, this is really only an objective description of the procedure. Today I would like to share my personal impressions of the first PEG placement with you. I will be focussing on the day of the procedure itself. Because the preliminary …
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The days after the PEG placement
After a PEG feeding tube has been placed, it takes a little while to regain consciousness due to the medication administered. The throat may hurt a little. After all, a lot has been pushed through there for the procedure. But that will soon go away. As a PEG tube is often established as part of …
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Why I have a PEG feeding tube
As I mentioned in the post “What is a feeding tube?“, there is an incredible range of indications for the use of a feeding tube. The reason why I live with a PEG feeding tube is muscle weakness. More specifically, spinal muscular atrophy type II (SMA for short). I won’t go into too much detail …
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