In my last blog post, I told you how the insensitive approach of my doctors initially led to me completely blocking the topic of PEG feeding tubes. Especially because my cautious interest was not taken seriously. This didn’t make it any easier for the staff at the next clinic to convince me to have a …
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The doctor’s consultation on the PEG – a negative experience
Sometimes you already suspect it (and may even have successfully suppressed it until now). When the doctors treating you tell you that a PEG feeding tube is really necessary, it is still often a shock. Even if a PEG is a really good therapeutic tool, a permanent feeding tube is usually nothing to look forward …
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Why I have a PEG feeding tube
As I mentioned in the post “What is a feeding tube?“, there is an incredible range of indications for the use of a feeding tube. The reason why I live with a PEG feeding tube is muscle weakness. More specifically, spinal muscular atrophy type II (SMA for short). I won’t go into too much detail …
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