As I described to you in one of my last posts, there was a time in my life with PEG when I consciously avoided eating food orally altogether. However, one early summer’s day, the afternoon turned out a little differently than originally planned. Everything took much longer and ended with dinner at a restaurant with friends. …
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Nutrition exclusively via the PEG
In one of my previous posts, I had already mentioned that a feeding tube does not automatically mean that you can no longer take in any food orally. Of course, it always depends on the individual situation. Like many other people, I am also a part-time oral eater. This means that I can take in small …
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The doctor’s consultation on the PEG – a positive experience
In my last blog post, I told you how the insensitive approach of my doctors initially led to me completely blocking the topic of PEG feeding tubes. Especially because my cautious interest was not taken seriously. This didn’t make it any easier for the staff at the next clinic to convince me to have a …
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The doctor’s consultation on the PEG – a negative experience
Sometimes you already suspect it (and may even have successfully suppressed it until now). When the doctors treating you tell you that a PEG feeding tube is really necessary, it is still often a shock. Even if a PEG is a really good therapeutic tool, a permanent feeding tube is usually nothing to look forward …
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Why I have a PEG feeding tube
As I mentioned in the post “What is a feeding tube?“, there is an incredible range of indications for the use of a feeding tube. The reason why I live with a PEG feeding tube is muscle weakness. More specifically, spinal muscular atrophy type II (SMA for short). I won’t go into too much detail …
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